Microcephaly Awareness Research & Education - Syracuse, New York

Microcephaly Awareness Research & Education: A Dedicated Resource

For individuals and families impacted by microcephaly, or those seeking to learn more about this complex condition, Microcephaly Awareness Research & Education stands as a vital resource. Located in Syracuse, New York, this volunteer-run organization is committed to providing support, information, and advocacy. They focus on raising awareness and promoting research to improve the lives of those affected.

Location & Contact Information:

The organization’s physical address is 1210 Butternut St, Syracuse, NY 13208, United States. Individuals can easily reach them by phone at 3153839512. Currently, they do not maintain a dedicated website, but information can be found through various community outreach efforts and partnerships.

Specialties & Services:

Microcephaly Awareness Research & Education operates primarily as a volunteer organization. This allows them to dedicate their resources to the core mission of supporting the microcephaly community. Their activities encompass:

• Awareness Campaigns: They actively participate in local and regional events to increase public understanding of microcephaly and its associated challenges.
• Resource Provision: While they don't maintain a central online repository, they connect individuals with relevant resources, including medical professionals, support groups, and research institutions.
• Advocacy: The organization advocates for improved access to care and research funding for individuals with microcephaly.
• Community Support: They foster a supportive environment for families and individuals affected by microcephaly, facilitating connections and sharing of experiences.

Key Characteristics & Focus:

The organization’s approach is characterized by a deep commitment to the patient and family experience. They prioritize connecting individuals with the resources they need, understanding that each case of microcephaly presents unique challenges and requires personalized support. Their operations are entirely driven by volunteers, reflecting a strong sense of community and dedication. They are particularly focused on promoting research into the causes, diagnosis, and treatment of microcephaly. This includes supporting initiatives that explore potential therapies and improve long-term outcomes for those living with the condition.

Accessibility Features:

To ensure inclusivity, the organization provides a wheelchair-accessible car park at their location. This demonstrates a commitment to accommodating individuals with mobility limitations and fostering an accessible environment for all members of the community.

Community Feedback:

Currently, Microcephaly Awareness Research & Education has 0 reviews on Google My Business, reflecting a need for greater visibility and community feedback. However, the lack of reviews doesn’t diminish the organization’s impact; it simply highlights the opportunity for increased engagement and awareness.

Overall Opinion:

The average opinion, based on available data, is 0/5. This suggests a significant area for improvement regarding online presence and community recognition. Despite this, the organization’s dedication to supporting the microcephaly community remains evident through its volunteer-driven operations and commitment to advocacy and awareness. Their focus on providing personalized support and facilitating connections makes them a valuable asset for individuals and families navigating the challenges associated with microcephaly. Further development of a website and increased community engagement would undoubtedly enhance their reach and impact.

Further Information & Resources:

While a dedicated website is unavailable, potential supporters and those seeking information can connect with the organization directly via phone at 3153839512. They can also inquire about local support groups and resources through community organizations and healthcare providers. Continued efforts to increase online visibility and expand their outreach will be crucial to maximizing their impact and serving the growing needs of the microcephaly community.